Tuesday, April 14, 2009

Maddie

So, that last post was not an April Fool's joke. I really did intend to come back and write some Deep Stuff about what girls are looking for in a story, but by the time I was ready to work on it, I got the news about Maddie. And then I just couldn't think about anything else.

The following pictures are supposed to be posted later, to sync with Maddie's funeral this afternoon, but I'm not sure if I'll have internet access. I also feel like there's nothing I can add that hasn't already been said, and generally said in such ways that I could never hope to improve upon them. I'm not sure I even have anything of value to add.

The only thing I have to add is the ache in my heart. Being still unemployed (and having unexpected car expenses twice in a week), we don't have two pennies to donate towards the marchers. We signed up for the March of Dimes walk in Dallas, but haven't been able to find a single sponsor, and the march is THIS SATURDAY. I don't know if they'll even let us walk. I guess if it comes down to it, we'll walk around our neighborhood.

I'm really feeling a bit too useless to even continue this post, but I just had to post SOMETHING, even if it was just this depressing, non-inspirational drivel in purple font.
Ultimately:
Heather, and by extension, Mike, I consider you my friend(s). My heart wrenches whenever I am reminded of Maddie or of your adventures with her and whenever I try to consider what kind of gut-twisting horror you're living with. I have, more than once, pondered it to the point of literally, physically gagging. She has been living here, in us, as well as in you, since you began sharing her with us through your posts. Here she remains.




4 comments:

  1. This story has touched us all. As a mom, we can feel the pain and it's just horrific and really, no words can explain how tragic this situation is. A parents worst nightmare. God bless their family.

    I'm also thinking about Stellan tonight... sounds like he is on his way to Boston.

    Also, just wanted to say hi. Found your blog through Her Bad Mother.

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  2. Hi there I read your post over on the NICU pay it forward blog--you wanted to know how to get in to a NICU to help with food, driving etc. start by calling the NICU and asking to speak with a Social worker or the Family Support liason. They can tell you what can be done (hippa laws) and how you can help. They usually have a family area inside the NICU or on the same floor as the NICU (our's was a level 3 NICU) they always had coloring books and small toys for brothers and sisters to play with. They were usually donated in somebody's name--so that could help too.
    I'm a mother to a former 25 weeker, 3 months in the NICU and many many weeks in the hospital after discharge.
    Veronica

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  3. Hi Della,

    In terms of offering actual help to families in the NICU, there are some issues with HIPPA that make it hard for the staff to share any kind of information with you, or even to let you in just to offer it up yourself. However, lots of NICUs have bulletin boards or support centers where you might be able to leave your information, and you could always tuck a note offering help into a small gift you drop off for the families. I hope this helps!

    Kristen

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  4. I was reading about Maddie last night...

    I popped over here, though, to tell you I loved your last comment to me. Thanks;)

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